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About fragilek

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  1. I was in Sandwich in R&D and later in Reg CMC Sandwich. We probably crossed paths either in Sandwich, Groton or at a DSTF lol 2 year Remission now, got to see my youngest daughter 21st her graduation and her and my elder daughters engagements and also squeezed a few cruises in - so all and all a very good 2 years.
  2. Yip, I owe my life to that drug and to the QE(II) Glasgow NHS staff who got me through a 6 month (bar the odd day out here and there) stay.
  3. Off - topic but just wanted to say I worked for them as a research Scientist my whole career but had to give up when my eldest daughter took ill. I was so proud to be doing my dream job of looking for cures, it was all I ever planned to do since about 12yrs old and I was so sad to let my career go but knew I had too. A few years ago I took ill with a rare form of ALM leukemia my chances were next to nill. I was put on a trial drug - nicknamed the Nuclear option as not too many people seemed to get through the trial but those that did make it seemed to do better than expected. It was a no brainer, I went on the randomized trial hoping I would get the new treatment. I did & that was now 2 yrs ago 😊 during my treatment I asked to be told nothing about the trial or my chances (I read the risk page only to sign and ignored the other pages). Being from field would have made it very hard to not start reading all the research papers I could find, and I knew mentally and physically I did not have the strength to do that. When my eldest took ill I did all that, and even fought her corner and won as my background allowed me to put a portfolio of a very convincing case together to get a treatment that was not yet available in the uk free. But I knew how much I got involved and how much it took out of me . Only after 1 yr remission did I ask for info about the trial I was on .... Karma.... it was a trial involving a Pfizer drug I couldn't believe it.
  4. My daughter got given a credit note for canceled Iceland air flights. She did not want that she wanted her money back but at that time the airline was just not playing ball. She contacted her bank (credit card booking) and they took up the case and she was refunded in full. The bank were fully aware that she had been issued a credit voucher she did not want & that did not make any difference to the refund.
  5. This is not just a problem for the elderly. I got Leukemia in my 40's now been in remission for 2 yrs. I was allowed to start cruising again last year. However, due to the treatment (trial drug that saved my life as without I had less than 5% chance so not complaining that its left a few issues) I have been left with no Lymphocytes. As a result there is a high chance vaccines may not work as I probably don't make enough T-cells. I am not allowed to travel anywhere that has endemic Rabies (it would be against consultants advice thus apart for being a stupid thing to do I would also not be insured) as post bite injections may not work. I am also not allowed to go in a swimming pool, as virus and mold would be too high a risk for me (I used to swim about 1/2 mile every week day too & miss it really badly). It won't matter how much vit C, D zinc or anything else I would take, I would still have very little immunity. I am sadly expecting to be told by my consultant team that my cruise days may be over at least for a few years until we see how this plays out. At the min (under consultants instruction) I have been in lockdown in my house (& garden) since 28th feb, no visitors allowed until last weekend and now only 1 other household in garden 2m away. So its not only the over seventies that will be affected if a vaccine that works without the activating of t-cells can't be found- There are a few being investigated but they always lag behind the main t-cell instigator type as the requirement to get a bulk vaccine that hits the spot for about 70% is understandably more of a priority right now.
  6. https://uk.finance.yahoo.com/news/coronavirus-tui-suspends-all-package-holidays-and-cruises-and-asks-for-state-aid-082549258.html All cruises cancelled now
  7. also asking for a bail out according to yahoo fianace Coronavirus: TUI suspends all package holidays and cruises and asks for state aid https://uk.finance.yahoo.com/news/coronavirus-tui-suspends-all-package-holidays-and-cruises-and-asks-for-state-aid-082549258.html
  8. You haven't been to Scotland in our Summer then
  9. UK government estimates that we have between 5000 to 10000 cases in the country . https://www.bbc.co.uk/news/av/health-51862922/up-to-10000-in-uk-likely-to-have-coronavirus-chief-scientific-adviser
  10. hopefully that will be what has happened, badly reported by bbc if that is the case
  11. Reports on the BBC that a passenger on the grand Princess has died- I have not heard that verified from any other source. It does not say if from Virus or not https://www.bbc.co.uk/news/uk-england-lancashire-51798946
  12. he is not on the ship he is getting photos from someone on the ship.
  13. He has not been happy with people using his photos without permission that is why I just posted the link a few posts ago
  14. just saw a photo of breakfast on https://twitter.com/keaneli It included fresh fruit yoghurt free juice coffee milk bread rolls & croiasonts omelet ham potatoes Don't know about anyone else but that would feed me for a day if the need arose I think what they mean is they don't have the unlimited selections they expect on a cruise. At this point in time that would be the least of my worries if I was on the ship
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