BApal

Mayo Clinic is where I am going. They also helped me immensely for something else, too. I was highly impressed with their specialists. I didn’t have it on any excursion either. It started when we got home. Maybe I just need to go on a ship and stay, lol. We had an aft cabin and I wonder if that had something to with it. There was vibration back there and I wouldn’t recommend that location for anyone prone to seasickness which I didn’t have. thank you ❣️

I am going to Mayo Clinic. Cleveland Clinic and Mount Sinai are ones on my list with treatment programs for this, also. I’m hoping Mayo can help. Thank you, great info ❣️

Unfortunately that can be the case. I’m I hopeful I will beat this. I have times when I don’t have symptoms which is a good sign. Thank you ❣️

Still in the diagnostic phase. That is an avenue I will do, however I already doing some of those things along with pretty clean nutrition. Thank you ❣️

Any other sufferers out there? We got off a lovely 32 night cruise and I have been rocking with horrible balance for almost 10 months now. I never had anything like this before. It’s a rare central vestibular disorder that typically arises following exposure to passive motion (i.e. boat, airplane, automobile, train, etc.). ‘Mal de Debarquement’ is French for ‘sickness of dis-embarkment’ Some people also have accompanying migraines and a few also have vertigo but not always. It is NOT seasickness and it is not helped by seasickness medications. Bonine and patches are not recommended. It’s not well studied. No cures. It’s not a psychological issue. Stress or anxiety is not the cause but having these symptoms is stressful. Most doctors don’t know much about it and have no clue about what to do about it. ENTs usually order tests to rule out inner ear problems , brain tumors , etc. There is some physical therapy that’s prescribed that includes balance exercises and eye exercises. It’s not fatal. Sometimes it never goes away. It’s miserable. Anyone one else experience this chronically?