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VACTERL

Members
  • Posts

    1
  • Joined

About Me

  • Location
    Arizona, USA
  • Interests
    Travel, Reading, Birdwatching
  • Favorite Cruise Line(s)
    Princess, Celebrity
  • Favorite Cruise Destination Or Port of Call
    Alaska

VACTERL's Achievements

Cool Cruiser

Cool Cruiser (2/15)

  1. I am female, 40, and identify as semi-disabled, due to VACTERL association (https://rarediseases.org/rare-diseases/vacterl-association/). VACTERL affects everyone differently. For me, for the most part, I can live my day-to-day life relatively normally, with the exception of flare ups or episodes that are unpredictable. These flare ups usually do not require any special equipment or space to manage, but they can leave me incapacitated for several hours at a time. To achieve this relative "normalcy" that minimizes the flare ups, I have medical management I do on a daily basis, that requires me laying prone on the bathroom floor, and while not required, an accessible showerhead is certainly helpful. I do not currently have any significant mobility issues and do not require the use of a mobility aid, but am developing osteoarthritis and stiffness in my knees and hips. For the most part, I would consider my disability "invisible." I really enjoy cruising. My last two cruises I booked regular cabins and while I managed, it was definitely challenging to be able to perform my medical management both from maneuverability and physical space standpoints, and more significantly from a personal privacy standpoint. I understand that accessible cabins are primarily designed for those in need of mobility aids, but the extra floor space in the bathroom would make a massive difference to me. However, I've watched people on this forum ream those who aren't "disabled enough" that they see book accessible cabins. If I book an accessible cabin, I don't want to deal with confrontation and angry people for making a decision related to a condition they won't be able to "see." I'm interested in general feedback on this issue I am struggling with. Thank you.
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