lenquixote66 Posted February 11, 2023 #1 Share Posted February 11, 2023 Is anyone cruising with Advanced (Stage 4 or 5) Parkinsons Disease ? Link to comment Share on other sites More sharing options...
meh56 Posted February 18, 2023 #2 Share Posted February 18, 2023 My husband has had Parkinson's for over 10 years and most of the time is pretty stable. We had not traveled during covid but sailed on HAL Koningsdam for Thanksgiving 2022. He uses a walker and we alway get an accessible cabin. We flew southwest from Phoenix to San Diego and overnighted before the cruise. Is there a specific question that I can answer for you? Link to comment Share on other sites More sharing options...
lenquixote66 Posted February 19, 2023 Author #3 Share Posted February 19, 2023 20 hours ago, meh56 said: My husband has had Parkinson's for over 10 years and most of the time is pretty stable. We had not traveled during covid but sailed on HAL Koningsdam for Thanksgiving 2022. He uses a walker and we alway get an accessible cabin. We flew southwest from Phoenix to San Diego and overnighted before the cruise. Is there a specific question that I can answer for you? Stage 4 Parkinsons is a different category than Stage 1. Link to comment Share on other sites More sharing options...
meh56 Posted February 19, 2023 #4 Share Posted February 19, 2023 He does not have stage 1. He has had the disease for over 10 years and has many issues with the main one being bent spine syndrome. His Neurologist is a Parkinson's specialist as well as movement disorder specialist and does not believe in assigning stages. He has been thru some pretty tough times but fights hard every day. He also has a pretty extensive list of drugs and last summer started a fairly new drug. We have been through some tough times but if our experience can help you just ask, we certainly understand where you are coming from. Link to comment Share on other sites More sharing options...
lenquixote66 Posted February 19, 2023 Author #5 Share Posted February 19, 2023 13 hours ago, meh56 said: He does not have stage 1. He has had the disease for over 10 years and has many issues with the main one being bent spine syndrome. His Neurologist is a Parkinson's specialist as well as movement disorder specialist and does not believe in assigning stages. He has been thru some pretty tough times but fights hard every day. He also has a pretty extensive list of drugs and last summer started a fairly new drug. We have been through some tough times but if our experience can help you just ask, we certainly understand where you are coming from. Due to Parkinsons I do not have control of my bowels necessitating frequent trips to bathrooms.This is associated with Stage 4. Link to comment Share on other sites More sharing options...
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