terry2 Posted November 30, 2020 #9676 Share Posted November 30, 2020 (edited) 1 hour ago, DamianG said: In late August my dad suddenly became ill and couldn't move his torso, arms and legs. We kept getting advised that steroids would put him right but eventually I spent over 2 hours making over 100 calls to get through to a specialist who told us to get him to A&E straight away. He's now been in 2 different hospitals and an infirmary over the last 10 weeks and has been diagnosed with Guillain-Barre syndrome so will need to go into full time care. Well, I've had GBS, and most people do make a partial recovery but very, very slowly. I would suggest you contact your local GBS support group to see how they can help. The charity is https://gaincharity.org.uk/ and the local support info is at http://gaincharity.org.uk/information-support/social-get-together/gain2gether-near-me/ Hope things do improve for you. Edited November 30, 2020 by terry2 typo 4 1 Link to comment Share on other sites More sharing options...
indiana123 Posted November 30, 2020 #9677 Share Posted November 30, 2020 Hope you are now on the up Damian. I hope everyone can get back to some kind of normal soon.... best wishes to everyone x 2 1 Link to comment Share on other sites More sharing options...
Bloodaxe Posted November 30, 2020 #9678 Share Posted November 30, 2020 59 minutes ago, AnnieC said: And all the best to everyone who's had a bad year; let's hope next year is brighter. How is your grandson getting on, Bloodaxe? Unfortunately not so good, his pain seems to have shifted to a different place, off School again at the moment. He had a day in hospital for tests last week but it seems his crohns is not letting up. 1 Link to comment Share on other sites More sharing options...
Bloodaxe Posted November 30, 2020 #9679 Share Posted November 30, 2020 (edited) 3 minutes ago, Bloodaxe said: Thanks for your concern, Eric Edited November 30, 2020 by Bloodaxe Link to comment Share on other sites More sharing options...
Josy1953 Posted November 30, 2020 #9680 Share Posted November 30, 2020 I hope that things get better soon for Damian and everyone else in a similar situation. I am desperate to see the end of this year because so many people are really suffering even though I have not had great problems personally 7 1 Link to comment Share on other sites More sharing options...
AnnieC Posted November 30, 2020 #9681 Share Posted November 30, 2020 4 minutes ago, Bloodaxe said: Unfortunately not so good, his pain seems to have shifted to a different place, off School again at the moment. He had a day in hospital for tests last week but it seems his crohns is not letting up. I am so sorry. Has anyone suggested regular infusions? They are expensive, thus NHS reluctant to fund them, but they have saved my daughter from hospital admission for over two years (she has had pancolitis since she was 9); not Crohns, but many of the treatments are similar and there are always several Crohn's patients having infusions when she has hers. 1 Link to comment Share on other sites More sharing options...
Bloodaxe Posted November 30, 2020 #9682 Share Posted November 30, 2020 1 minute ago, AnnieC said: I am so sorry. Has anyone suggested regular infusions? They are expensive, thus NHS reluctant to fund them, but they have saved my daughter from hospital admission for over two years (she has had pancolitis since she was 9); not Crohns, but many of the treatments are similar and there are always several Crohn's patients having infusions when she has hers. He was having infusions before his operation and I believe they will be ongoing, it's very worrying but they are doing all they can for him. 2 Link to comment Share on other sites More sharing options...
DamianG Posted November 30, 2020 #9683 Share Posted November 30, 2020 1 hour ago, Bloodaxe said: I would also like to add my best wishes to Damian and his family,. We have also had terrible last year with the loss of our Son and our Grandsons health problems. It's hard to look on the bright side at the moment but hopefully better times will return for everyone soon. Thank you, knowing what you have been through and are going through your comments mean a lot. All the best. 1 Link to comment Share on other sites More sharing options...
grapau27 Posted November 30, 2020 #9684 Share Posted November 30, 2020 30 minutes ago, Bloodaxe said: Unfortunately not so good, his pain seems to have shifted to a different place, off School again at the moment. He had a day in hospital for tests last week but it seems his crohns is not letting up. I'm sorry to hear your grandson is not well again Eric. I think we all should say a prayer for his recovery and long term good health. Graham. 3 Link to comment Share on other sites More sharing options...
DamianG Posted November 30, 2020 #9685 Share Posted November 30, 2020 1 hour ago, terry2 said: Well, I've had GBS, and most people do make a partial recovery but very, very slowly. I would suggest you contact your local GBS support group to see how they can help. The charity is https://gaincharity.org.uk/ and the local support info is at http://gaincharity.org.uk/information-support/social-get-together/gain2gether-near-me/ Hope things do improve for you. Thanks Terry, I hope that you are well. Link to comment Share on other sites More sharing options...
DamianG Posted November 30, 2020 #9686 Share Posted November 30, 2020 1 hour ago, indiana123 said: Hope you are now on the up Damian. I hope everyone can get back to some kind of normal soon.... best wishes to everyone x Thank you. Link to comment Share on other sites More sharing options...
DamianG Posted November 30, 2020 #9687 Share Posted November 30, 2020 26 minutes ago, Josy1953 said: I hope that things get better soon for Damian and everyone else in a similar situation. I am desperate to see the end of this year because so many people are really suffering even though I have not had great problems personally Thanks Josy, I know you are still having a tough time even if it isn't personal and I appreciate your comments. As my wife said 2020 "can do one now..." 4 Link to comment Share on other sites More sharing options...
AnnieC Posted November 30, 2020 #9688 Share Posted November 30, 2020 27 minutes ago, Bloodaxe said: He was having infusions before his operation and I believe they will be ongoing, it's very worrying but they are doing all they can for him. That's immensely disappointing for you all. The only thing I can say is that in the 25 years since my daughter was diagnosed the treatments have improved immensely and rapidly - nothing she is on now was available in the 1990s. Fingers crossed they come up with something that works for your grandson; there's a lot of research going on. 2 Link to comment Share on other sites More sharing options...
terry2 Posted November 30, 2020 #9689 Share Posted November 30, 2020 1 hour ago, DamianG said: Thanks Terry, I hope that you are well. Yes thanks - the received wisdom is that after 3 years there is no further recovery, and I had it about 15 yrs ago so I'm stuck. I manage reasonable well but can't walk as far or as fast as I would like, and I have problems with my hands. I just hope your father makes progress: the important thing is that he needs to keep trying to do things. 1 1 Link to comment Share on other sites More sharing options...
indiana123 Posted November 30, 2020 #9690 Share Posted November 30, 2020 Its getting scary here.. I live in the worst place in England for Covid. Rumour has it that most cases here are in our three prisons with very high percentages of infections stated, but I don't know if it is that thats not helping the figures or if its in the general population. I did say some weeks ago about a lady I know who borrowed a friend's COPD lanyard because she didn't fancy a mask. She had some weird ideas. I think the message got through eventually but perhaps people like that helped put our small community where we are now. I'm not going out the door! 7 Link to comment Share on other sites More sharing options...
AndyMichelle Posted November 30, 2020 #9691 Share Posted November 30, 2020 5 minutes ago, indiana123 said: Its getting scary here.. I live in the worst place in England for Covid. Rumour has it that most cases here are in our three prisons with very high percentages of infections stated, but I don't know if it is that thats not helping the figures or if its in the general population. I did say some weeks ago about a lady I know who borrowed a friend's COPD lanyard because she didn't fancy a mask. She had some weird ideas. I think the message got through eventually but perhaps people like that helped put our small community where we are now. I'm not going out the door! I assume many who work in the prisons live locally, that would contribute to the spread. Andy 2 Link to comment Share on other sites More sharing options...
indiana123 Posted November 30, 2020 #9692 Share Posted November 30, 2020 Yes, I think you are probably right there Andy. Its strange how quickly things can escalate.. it seemed to get really very serious all of a sudden. 2 Link to comment Share on other sites More sharing options...
AndyMichelle Posted November 30, 2020 #9693 Share Posted November 30, 2020 13 minutes ago, indiana123 said: Yes, I think you are probably right there Andy. Its strange how quickly things can escalate.. it seemed to get really very serious all of a sudden. Keep you and yours safe... And they say it doesn't exist... Andy 4 Link to comment Share on other sites More sharing options...
Dermotsgirl Posted November 30, 2020 #9694 Share Posted November 30, 2020 41 minutes ago, indiana123 said: Its getting scary here.. I live in the worst place in England for Covid. Rumour has it that most cases here are in our three prisons with very high percentages of infections stated, but I don't know if it is that thats not helping the figures or if its in the general population. I did say some weeks ago about a lady I know who borrowed a friend's COPD lanyard because she didn't fancy a mask. She had some weird ideas. I think the message got through eventually but perhaps people like that helped put our small community where we are now. I'm not going out the door! Yes, north Kent and Medway has suddenly become Covid central, and I’m finding it quite unsettling. i go out for a daily walk most days but we’re avoiding human interaction as much as possible. We had the man in for the burglar alarm service today. He wore a mask, we wore a mask, we kept our distance, and he wiped down surfaces that he touched.. After he’d gone, we wiped down the surfaces as well, just in case. I’ve got a hair appointment on Wednesday. As it’s the first day of business after lockdown, I think it must be the safest day possible, as my hairdresser won’t have had any customers for 4 weeks, so will be less likely to have been exposed to infection. There doesn’t seem to be much local leadership, in the way that, for example, Andy Burnham is a visible local leader for Manchester, so there’s no central rallying point. it doesn’t feel very good at the moment. 7 Link to comment Share on other sites More sharing options...
kalos Posted November 30, 2020 #9695 Share Posted November 30, 2020 T’was a month before Christmas, And all through the town, People wore masks, That covered their frown. The frown had begun Way back in the Spring, When a global pandemic Changed everything. They called it corona, But unlike the beer, It didn’t bring good times, It didn’t bring cheer. Contagious and deadly, This virus spread fast, Like a wildfire that starts When fuelled by gas. Airplanes were grounded, Travel was banned. Borders were closed Across air, sea and land. As the world entered lockdown To flatten the curve, The economy halted, And folks lost their nerve. From March to July We rode the first wave, People stayed home, They tried to behave. When summer emerged The lockdown was lifted. But away from caution, Many folks drifted. Now it’s November And cases are spiking, Wave two has arrived, Much to our disliking. Frontline workers, Doctors and nurses, Try to save people, From riding in hearses. This virus is awful, This COVID-19. There isn’t a cure. There is no vaccine. ** It’s true that this year Has had sadness a plenty, We’ll never forget The year 2020. And just ‘round the corner - The holiday season, But why be merry? Is there even one reason? To decorate the house And put up the tree, When no one will see it, No-one but me. But outside my window The snow gently falls, And I think to myself, Let’s deck the halls! So, I gather the ribbon, The garland and bows, As I play those old carols, My happiness grows. Christmas ain’t cancelled And neither is hope. If we lean on each other, I know we can cope. Stay safe everyone ! (** Was written before vaccine were found ) 9 Link to comment Share on other sites More sharing options...
Rare SarahHben Posted November 30, 2020 #9696 Share Posted November 30, 2020 13 minutes ago, Dermotsgirl said: Yes, north Kent and Medway has suddenly become Covid central, and I’m finding it quite unsettling. i go out for a daily walk most days but we’re avoiding human interaction as much as possible. We had the man in for the burglar alarm service today. He wore a mask, we wore a mask, we kept our distance, and he wiped down surfaces that he touched.. After he’d gone, we wiped down the surfaces as well, just in case. I’ve got a hair appointment on Wednesday. As it’s the first day of business after lockdown, I think it must be the safest day possible, as my hairdresser won’t have had any customers for 4 weeks, so will be less likely to have been exposed to infection. There doesn’t seem to be much local leadership, in the way that, for example, Andy Burnham is a visible local leader for Manchester, so there’s no central rallying point. it doesn’t feel very good at the moment. I agree, I feel much more wary out and about locally at the moment than I did before. My husband, son and I walked to Hempstead Valley yesterday and got a few bits from Sainsburys, Boots and M&S before all the shops open on Wednesday, figured it would be much less busy. Youngest daughter is a little bit nervous about going back to work there later this week. The COVID rate in our immediate area fluctuates but is currently around 3 times the national average. 4 Link to comment Share on other sites More sharing options...
Adawn47 Posted November 30, 2020 #9697 Share Posted November 30, 2020 (edited) 1 hour ago, indiana123 said: Its getting scary here.. I live in the worst place in England for Covid. We once held that dubious record and yes, It's scary. There's nothing you can do but be extra cautious. We've come through it and are now one of the lowest in South Yorkshire. Besides, who wants to go out in this awful weather anyway? Much cosier indoors.Take care. Avril Edited November 30, 2020 by Adawn47 3 Link to comment Share on other sites More sharing options...
Adawn47 Posted November 30, 2020 #9698 Share Posted November 30, 2020 8 minutes ago, kalos said: T’was a month before Christmas, And all through the town, People wore masks, That covered their frown. The frown had begun Way back in the Spring, When a global pandemic Changed everything. They called it corona, But unlike the beer, It didn’t bring good times, It didn’t bring cheer. Contagious and deadly, This virus spread fast, Like a wildfire that starts When fuelled by gas. Airplanes were grounded, Travel was banned. Borders were closed Across air, sea and land. As the world entered lockdown To flatten the curve, The economy halted, And folks lost their nerve. From March to July We rode the first wave, People stayed home, They tried to behave. When summer emerged The lockdown was lifted. But away from caution, Many folks drifted. Now it’s November And cases are spiking, Wave two has arrived, Much to our disliking. Frontline workers, Doctors and nurses, Try to save people, From riding in hearses. This virus is awful, This COVID-19. There isn’t a cure. There is no vaccine. ** It’s true that this year Has had sadness a plenty, We’ll never forget The year 2020. And just ‘round the corner - The holiday season, But why be merry? Is there even one reason? To decorate the house And put up the tree, When no one will see it, No-one but me. But outside my window The snow gently falls, And I think to myself, Let’s deck the halls! So, I gather the ribbon, The garland and bows, As I play those old carols, My happiness grows. Christmas ain’t cancelled And neither is hope. If we lean on each other, I know we can cope. Stay safe everyone ! (** Was written before vaccine were found ) I love that poem kalos. Thank you Avril 1 1 Link to comment Share on other sites More sharing options...
grapau27 Posted November 30, 2020 #9699 Share Posted November 30, 2020 17 minutes ago, kalos said: T’was a month before Christmas, And all through the town, People wore masks, That covered their frown. The frown had begun Way back in the Spring, When a global pandemic Changed everything. They called it corona, But unlike the beer, It didn’t bring good times, It didn’t bring cheer. Contagious and deadly, This virus spread fast, Like a wildfire that starts When fuelled by gas. Airplanes were grounded, Travel was banned. Borders were closed Across air, sea and land. As the world entered lockdown To flatten the curve, The economy halted, And folks lost their nerve. From March to July We rode the first wave, People stayed home, They tried to behave. When summer emerged The lockdown was lifted. But away from caution, Many folks drifted. Now it’s November And cases are spiking, Wave two has arrived, Much to our disliking. Frontline workers, Doctors and nurses, Try to save people, From riding in hearses. This virus is awful, This COVID-19. There isn’t a cure. There is no vaccine. ** It’s true that this year Has had sadness a plenty, We’ll never forget The year 2020. And just ‘round the corner - The holiday season, But why be merry? Is there even one reason? To decorate the house And put up the tree, When no one will see it, No-one but me. But outside my window The snow gently falls, And I think to myself, Let’s deck the halls! So, I gather the ribbon, The garland and bows, As I play those old carols, My happiness grows. Christmas ain’t cancelled And neither is hope. If we lean on each other, I know we can cope. Stay safe everyone ! (** Was written before vaccine were found ) Lovely poem and very apt Kalos. 1 Link to comment Share on other sites More sharing options...
kalos Posted November 30, 2020 #9700 Share Posted November 30, 2020 16 minutes ago, SarahHben said: I agree, I feel much more wary out and about locally at the moment than I did before. My husband, son and I walked to Hempstead Valley yesterday and got a few bits from Sainsburys, Boots and M&S before all the shops open on Wednesday, figured it would be much less busy. Youngest daughter is a little bit nervous about going back to work there later this week. The COVID rate in our immediate area fluctuates but is currently around 3 times the national average. As Avril said our areas were going through the roof and only a few weeks back just stay in where possible and be extra careful where possible . Stay safe , it will come back down . 4 Link to comment Share on other sites More sharing options...
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